CONGENITAL HEART DEFECTS
WHY DO WE DONATE TO CHD's? Because we are 1 in 100.
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Jordan, a founding member of The Wanderheart Project (now Life Unplugged), and his wife, Danielle, had their son Sawyer on June 4th, 2013. Sawyer was born with a congenital heart defect called Hypoplastic Left Heart Syndrome (HLHS), meaning the whole left side of his heart did not develop. Their family spent six weeks at C.S. Mott Children's Hospital in Ann Arbor, MI, where Sawyer was born, had open heart surgery, and spent time recovering and healing. Unfortunately, Sawyer passed away at about 10 weeks of age.
Jordan and Danielle were extremely fortunate to have an immense support system of family and friends around them, as well as jobs that allowed them both to move into the hospital and pour their entire lives into Sawyer for that period of time. During their time at the hospital, they met several families whose circumstances were even more challenging due to the stressors of every day life; missed income, split families, bills piling up, travel and lodging costs from being displaced from their homes, etc.
Wanting to turn a challenging situation into good, Jordan and Danielle dreamt of creating a charity to support other families going through similar journeys with HLHS and other CHD's. While Sawyer was with them, their other children, Annika and Noah, loved to sing “This Little Light of Mine” to Sawyer. This inspired the family to name the charity “Sawyer's Light" to carry the same message of hope, strength, and love that Sawyer brought to all of us in his short time on Earth.
The goal of Sawyer's Light is to provide support and encouragement to families going through the incredibly challenging experience of helping a child heal. We are now taking this charity a step further by making Sawyer's Light an official non-profit entity, where we will carry the message of hope, strength, and love across the country!
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IN LOVING MEMORY OF
SAWYER MATTHEW BRUURSEMA